under 01GM1105

Links

Partner websites:
Continuative Links
  • German Networks on Rare Diseasesn
    Overview of all networks on rare diseases funded by the German Federal Ministry of Education and Research (Bundesministerium für Bildung und Forschung, BMBF).
    www.research4rare.de/en/
  • ACHSE e. V (available in German only)
    In der Allianz Chronischer Seltener Erkrankungen (ACHSE) haben sich über 90 Selbsthilfeorganisationen zusammengeschlossen.
    www.achse-online.de
  • Fortbildungsakademie für Seltene Erkrankungen (FAKSE) (available in German only)
    www.fakse.info
  • Orphanet
    The portal for rare diseases and orphan drugs
    www.orpha.net/consor/cgi-bin/index.php?lng=EN
  • EURORDIS
    EURORDIS is a non-governmental patient-driven alliance of patient organisations representing more than 561 rare diseases patient organisations in over 51 countries.
    www.eurordis.org
  • IRDiRC
    The International Rare Disease Research Consortium (IRDiRC) teams up researchers and organizations investing in rare diseases research.
    www.irdirc.org